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The Me in the Mirror, by Connie Panzarino
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Writer, activist and artist Connie Panzarino was born in 1947 with the rare disease Spinal Muscular Atrophy Type III, formerly called Amytonia Congenita. Throughout a childhood filled with both pain and joy, she strove to define herself: "I knew I was different. Now I had a name for the difference, like being Italian or Jewish. I was an Amytonia. I didn't understand if that meant that I would never walk, or if all it meant was lack of muscle tone. I didn't know that most children with this disease die before they're five years old." In this deeply moving and eloquent memoir, Connie Panzarino describes her decades of struggle and triumph, her relationships with family members and long-time lover Ron Kovic (author of Born on the Fourth of July), her eventual turn to lesbianism, and her years of pioneering work in the disability rights movement. Filled with spirit, passion and defiance, The Me In The Mirror tells the story of a remarkable life.
- Sales Rank: #1428973 in Books
- Brand: Brand: Seal Press
- Published on: 1994-04-11
- Original language: English
- Number of items: 1
- Dimensions: 8.52" h x .71" w x 5.54" l, .84 pounds
- Binding: Paperback
- 260 pages
- Used Book in Good Condition
From Booklist
Panzarino is a severely disabled lesbian activist and art therapist, and her story is scary in its forthright honesty. Born with a rare progressive muscular disease, she has lived a life in which virtually no achievement is small and nothing is taken for granted. She speaks uncompromisingly about the pain of ill-advised childhood braces, the guilt at disappointing her parents, waiting for assistance with toileting, and being barred from elementary school and the day-to-day companionship of other children. Dependent on a mother with two additional children, one of them born with the same malady, Panzarino well communicates the great frustration, anguish, and turmoil she endured during her fight for education, employment, a usable wheelchair, reliable aides, transportation, accessibility, and, ultimately, a life of her own in which she could realize personal and political growth. A longtime friend and sometime lover of disability rights activist Ron Kovic, Panzarino eventually turned to lesbianism and political activism. She established Beechwood, a communal living environment for disabled women, where she continues her work as a therapist, writer, and activist. Whitney Scott
From the Back Cover
Writer, activist and artist Connie Panzarino was born in 1947 with the rare disease Spinal Muscular Atrophy Type III, formerly called Amytonia Congenita. Throughout a childhood filled with both pain and joy, she strove to define herself: "I knew I was different. Now I had a name for the difference, like being Italian or Jewish. I was an Amytonia. I didn't understand if that meant that I would never walk, or if all it meant was lack of muscle tone. I didn't know that most children with this disease die before they're five years old". In this deeply moving and eloquent memoir, Connie Panzarino describes her decades of struggle and triumph, her relationships with family members and long-time lover Ron Kovic (author of Born on the Fourth of July), her eventual turn to lesbianism, and her years of pioneering work in the disability rights movement. Filled with spirit, passion and defiance, The Me In The Mirror tells the story of a remarkable life.
Most helpful customer reviews
5 of 5 people found the following review helpful.
A Great Leader--A Great Woman
By John Fasano
I finished this book last night, and I was frankly infuriated by some of the earlier reviews posted about this book. This is probably the most illuminating book about the day to day existence of an extremely disabled person; which holds back nothing, that has ever been written. Panzarino, who, despite her disability was a powerful force for chance in the way the disabled are treated in society, passed away on the 4th of July of this year. Her passing only makes this book more poignant. Panzarino's style is eloquent and engaging; her story both heartbreaking and inspirational. This book is a MUST read for anyone interested in reading fascinating biographies of women who have truly helped to change the world, as well as a great tool for understanding what those with disabilities go through in a world that wasn't designed with them in mind. This book changed my view of the world profoundly. I am planning on buying it for all my friends as Xmas gifts--and hope that Connie's incredible courage wil inspire them as much as it did me.
1 of 1 people found the following review helpful.
Honest and Funny
By A Customer
I read this book a few years a go and loved it. I think it was an honest book. I know it is because I have SMA like the author so I am a good judge of the subject. This book is not "Preachy" or filled with religious meaning like some disabled books. Nor does it make the disabled look needy or helpless. It's just about her life. It's not supposed to go in to great detail of specific disability issues...that's what essays and textbooks are for. Even so, I do think it does give the average "walkie-talkie" insight of disabled culture. Everything from care, school, career and romance. The writing is in everyday language and shows her humor in dealing with her struggles. The main flaw is the poor edit job. I didn't find it too distracting (if you can handle reading a personal journal you should be OK with this book) and the book is a quick read. There is a great need for books on adults with born with disabilities and disabled women. I'm glad this book made it!
8 of 9 people found the following review helpful.
a baldly honest inside look into a disabled womin's life
By krista moongarden
Ms. Panzarino presents an accurate and passionate account of an absolutely remarkable life. She survived the disability that should have killed her as a child, the terrible pressures of her home, where she and her mother were trapped in a dance with no help for either. She fought her family and the "abled" world for her independence and THRIVED as a whole womin in a society which assigns a half-life to the disabled adult. I am new to the disabled community, having suffered a major stroke at the age of 49 and two small ones since. They have left me nearly speechless but I cannot even imagine the world Ms. Panzrino has had to live in. I can only admire this brave womin's strength, fortitude, intelligence and candor. The reviewer who did not see the life story and daily life of a disabled person did NOT read the same book I read!! This is and excellent read by an enlightened individual! My only disappointment is that there has not been a follow-up book since this wonderful tome was written!
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